Palliative Care for Children
A guide for improving the quality of life of patients and their families
In memory of Samuel John Frederick Platt
– 9 April 2015 to 22 July 2016 –
A little boy who spent his entire life in ICU and never went home
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- Acknowledgements
- Introduction
- 1 The principles and practice of palliative care for children
- 2 Ethics and decision making
- 3 Communication
- 4 Teamwork, managing conflict and self-care
- 5 Holistic assessment and palliative care planning
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6 Psychosocial care and support
- Contents
- Objectives
- Assessing a child’s psychosocial needs
- The right to continuing education
- The role of the community in children’s palliative care
- The role of the family in children’s palliative care
- The need to support the siblings
- Principles of relating with the child and the family
- Case studies
- 7 Cultural understanding and spiritual care
- 8 Pain management
- 9 Management of respiratory and gastrointestinal symptoms
- 10 Management of neurological, nutritional and skin symptoms
- 11 End-of-life care
- 12 Loss, grief and bereavement
- Appendix A: The International Children’s Palliative Care Network (ICPCN) charter of rights for life-limited and life-threatened children
- Appendix B: Communication role plays
- Appendix B1: Communication assessment tool
- Appendix B2: Self-reflection tool
- Appendix C: Debriefing model
- Appendix D: Palliative care plan
- Appendix E: PatchSA Advance care plan
- Appendix F: Using the QUESTT approach to assess the child
- Appendix G: Age appropriate pain rating scales
- Appendix H: Drug formulary
- Appendix I: Instructions for inserting and caring for a butterfly needle for a subcutaneous infusion
- Appendix J: PatchSA terminal care plan and end-of-life care plan checklist
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