Quiz 11: End-of-life care
Please choose the one, most correct answer to each question or statement.
- What is end-of-life care?
- The same as palliative care
- Care of a child who is likely to die soon
- Care during the last months of a child’s life
- Care that starts when a fatal diagnosis is made
- What is the purpose of end-of-life care?
- To speed up the dying process
- To prolong the dying process
- To achieve a good death
- To reduce the stress on the family and staff
- When working with a dying child and family:
- Be sure to fill the awkward silences by talking to the family
- It does not matter what you say as long as you keep the family’s mind off the dying child
- Just be present even if you do not know what to say
- You should offer advice or read a section from a holy book
- What is a barrier to providing good end-of-life care?
- Not recognising that a child is dying
- Mistaking a stable child for one who is dying
- ‘Difficult’ families
- Lack of ICU beds
- How easy or difficult is it to know when a child will die?
- It is easy
- It is easier than in an adult
- It is easy if you have known the child for a long time
- It is often difficult
- Indicators of impending death include:
- Increased interaction and playfulness
- Passing lots of urine
- Clingy behaviour
- Stable vital signs
- What is important for a ‘good death’?
- Delaying death until everyone is ready
- The focus is on the dying child
- The focus is on the surviving family members
- A quick and sudden death reduces staffing demands
- The place of death for a child depends on:
- The wishes of the family and available resources
- The provincial policy
- The choice of the healthcare team
- The reason the child is dying
- When discussing the child’s death with the family:
- The doctor’s religion should decide what needs to be done
- The hospital rules must always be followed even if the family disagree
- All families need a lot of guidance and instruction
- Health carers should work sensitively, at the family’s pace
- An advance care plan:
- Is strictly confidential
- Should be drawn up when the child is dying
- Should be drawn up in a time of calm
- Should not be modified at any time
- What is a terminal care plan?
- A plan to stop all symptom management
- A plan that deals specifically with end-of-life concerns and issues
- Assessing the cost of hospitalisation
- A plan that is used before the dying phase
- The main aim of end-of-life symptom control is to:
- Speed up the dying process
- Keep the child awake and aware
- Minimise the child’s pain and fear
- Prolong life for as long as possible
- When managing pain at the end-of-life:
- There is no maximum dose of opioids
- Opioids are to be used only as a last option
- Opioids commonly cause respiratory depression
- The morphine dose should be increased slowly
- What does the management of shortness of breath at the end-of-life include?
- Intubation and ventilation
- Oxygen via a face mask
- Ensuring the child lies flat in bed
- Opening a window, or directing a fan towards the child
- Restlessness and agitation:
- Could be due to constipation or urinary retention
- Indicates psychiatric problems
- Should be conservatively managed without sedation
- Should only be managed with morphine
- Airway secretions at the end-of-life:
- Are very distressing to the patient
- Should be managed with increased intravenous fluids
- Can be treated with hyoscine butylbromide (Buscopan)
- Should be regularly suctioned
- Seizures at the end-of-life:
- Should always be treated in hospital
- Buccal midazolam (Dormicum) can be given at home
- Underlying causes should be ignored
- Rarely happen, so it is wasteful to prepare for them
- Massive haemorrhage at the end-of-life:
- Can be managed with white towels
- Is generally not distressing
- Is managed with an emergency blood transfusion
- Sedation should be given if the child is awake and afraid
- When providing fluid and food at the end-of-life:
- Only give food if the child is hungry
- Ensure the child is fed, by whichever route is best
- Intravenous fluids should be a given rather than oral fluids
- Supplements still play an important role
- What information does the family need to know that death has occurred?
- That the child has stopped moving both arms and legs
- There is no breath, heartbeat and pupils will be fixed
- There may still be a few gasps of air even though the heart has stopped beating
- Rigor mortis will start immediately