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We have taken every care to ensure that drug dosages and related medical advice in this book are accurate. However, drug and disinfectant dosages can change and are updated often, so always double-check dosages and procedures against a reliable, up-to-date formulary and the given drug’s documentation before administering it.

Perinatal Palliative Care: A guide to supporting families when a baby is at high risk of dying before or shortly after birth

First published in 2022 by Bettercare. This version produced on 26 February 2025.

Text © The PatchSA Training Team 2022

ISBN (paperback): 978-1-928313-22-9

Excluding content explicitly credited to others, this book is published under a Creative Commons Attribution Non-Commercial No Derivatives License. For details, see creativecommons.org/licenses/by-nc-nd/4.0.

This licence means you may share, copy and redistribute the material in any medium or format under the following terms:

  • Attribution — You must give appropriate credit, provide a link to the licence, and indicate if changes were made. You may do so in any reasonable manner, but not in any way that suggests the licensor endorses you or your use.
  • Non-Commercial — You may not use the material for commercial purposes.
  • No Derivatives — If you remix, transform, or build upon the material, you may not distribute the modified material.

For any other uses, please contact Bettercare. Visit bettercare.co.za.

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      1. Home
      1. How to use our books
      2. Buy printed books
      3. About Bettercare
      4. FAQs
      5. Contact us
      1. Acknowledgements
      2. Introduction
        1. About Bettercare
        2. Why decentralised learning?
        3. Free Bettercare Online Learning Platform
        4. Learning programmes
        5. Format of the courses
        6. Contributors
        7. Updating the course material
        8. Contact information
        9. Registration
      3. 1 Introduction to perinatal palliative care
        1. Contents
        2. Objectives
        3. Understanding perinatal palliative care
        4. The importance of perinatal palliative care
        5. When to provide perinatal palliative care
        6. The continuum of perinatal palliative care
        7. Different points at which perinatal palliative care can be provided
        8. Providing palliative care alongside other treatments
        9. Case studies
      4. 2 Providing palliative care in the antenatal period
        1. Contents
        2. Objectives
        3. Providing care during the antenatal period
        4. Management if the decision for a termination is made
        5. Management if the decision to continue with the pregnancy is made
        6. Holistic perinatal palliative care planning
        7. Management if there is an unexpected early death of the fetus
        8. Case studies
      5. 3 Care and support during labour and immediately after delivery
        1. Contents
        2. Objectives
        3. Decision making before delivery
        4. Management during labour
        5. Management of the baby and mother after delivery
        6. Case studies
      6. 4 Care and support during the neonatal period
        1. Contents
        2. Objectives
        3. The role of palliative care
        4. Setting goals of care
        5. Care of the baby
        6. Managing pain and distressing symptoms
        7. Supporting the mother and other family members
        8. Place of care
        9. End-of-life care
        10. Supporting the family at end-of-life
        11. Care after the death of the baby
        12. Case studies
      7. 5 Key considerations in perinatal palliative care
        1. Contents
        2. Objectives
        3. Care and support of the family after the death of the baby
        4. Post-partum care and discharge
        5. Other circumstances needing consideration
        6. The role of genetic counselling
        7. Care of self
        8. Case studies
      8. Appendix A: Perinatal palliative care birth plan checklist
      1. How to use our books
      2. Buy printed books
      3. About Bettercare
      4. FAQs
      5. Contact us

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